Overland Park, Kansas student rides 150 miles to raise awareness [Video]

A 17-year-old Overland Park high school student is nearing the completion of an extraordinary bike ride to raise research funds and awareness for his exceptionally rare metabolic disorder.Carson Hunt is legally blind and has minimal vision. He was born with homocystinuria cblG (HCU), one of only 51 known cases worldwide for this strain.This condition leaves him constantly vulnerable to vision loss, strokes, heart attacks, and seizures.Born in Missouri, a state without a newborn screening test for HCU, it took doctors three months after Carson’s birth to identify his condition. They offered his parents a bleak outlook.“You probably should just take him home and love him because we don’t know what to do, we don’t know how to treat it, and we’ve never seen anything like this before,” said Dana Hunt, Carson’s mother, who advocates for newborn screening for HCU in every state.“I’m at an age where doctors didn’t expect me …