Lagos State Working With Partners To Address Usher Syndrome [Video]

Lagos State Government is creating a more inclusive environment for Persons who might be living with Usher Syndrome, a genetic disorder that causes blindness and deafness.

Lagos, through the Office for Disability Affairs, has now joined some countries around the world to commemorate global usher syndrome day.

This declaration forms part of the policy of inclusion of the state government towards ensuring that no one is left behind, including persons with disabilities.

Imagine living in a world where you’re gradually losing your sight and hearing. Usher Syndrome, a rare genetic disorder, affects 400,000 people globally, causing deaf-blindness and mobility issues.

In Nigeria, the condition remains poorly understood and addressedFor the Executive Director, Lion Heart Ability Leaders International Foundation, Solomon Okelola, being deafblind presents a daily challenge, more concerning is that Nigeria lacks genetic testing facilities and knowledgeable medical practitioners that can identify and manage this condition.

Solomon’s personal struggle …